What you can do for them 

You may feel helpless at times when you see someone you care for have a PBA episode. But there are ways you can help:

  • Relate. They may be embarrassed by symptoms and reluctant to talk about their condition. Let them know you understand that their PBA episodes are not something they can control.
  • Remind. Let your loved one know that PBA is a neurologic condition. In other words, PBA is not their fault.
  • Reassure. Let them know they’re not alone. Nearly 2 million people in the United States suffer from PBA.

 

Caregiving also means caring for yourself

While families provide 80% of the long-term care in the United States, it’s hard to help others if you don't take care of yourself. Caring for a loved one can be a positive, loving experience, but it can also result in stress if you don’t take care of your own needs. Here are a few tips:

  • Exercise regularly. Exercise helps with sleep, reduces tension, and increases energy. Just walking 20 minutes a day, 3 times a week can help.
  • Reduce stress. Learn and use stress reduction techniques, such as yoga, or meditation.
  • Ask for help. You may feel you don’t want to bother others, but people want to help. Keep a list ready of short, simple tasks that others can do.
  • Communicate. When you speak directly about what you need, you can get the support and help you’re looking for.
  • Set goals. Make a list of things you would like to accomplish in the next 3 months, such as feeling healthier. Then break it down into steps to get there, such as:

    1. Walking with a friend once a week.

    2. Taking a break to stretch in the afternoon.

    3. Making an appointment for a check-up.

 

Helpful advice from other organizations 

Learn more about getting the support you need. Please note that these links will take you outside of the NUEDEXTA.com website to sites that are not controlled by Avanir. Avanir accepts no responsibility for the content or services of the linked sites.

Discover more tips for taking care of yourself

Mayo Clinic fitness resources

Making the transition to a long-term care facility

Caregivers' rights

American Stroke Association

Alzheimer’s Association

National MS Society

BrainLine

ALS Association

National Parkinson’s Foundation

Family Caregiver Alliance

National Alliance for Caregiving

 

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Want to share your own PBA story?

As a caregiver for someone living with PBA, you have a special perspective on how the condition affects people who have it. That's why sharing your own PBA experiences may be a great way to help people with PBA and other caregivers like you.

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